WELCOME TO THE DIGITAL ME. I’M CASANDRA GRUNDSTROM.

 

BIO

Hi, I'm Casandra. I'm a recently graduated Ph.D. working as a postdoctoral researcher part of the digital enterprise at NTNU in Norway. The goal of my doctoral research was to advocate for the fair and valuable use of health data. Designing and exploring mechanisms that enable transparent and equal access, control, sharing, and use of health data. 

My areas of academic expertise and interest are:

  • human-centric management of health data 

  • digital transformation of connected insurance

  • mechanisms that represent the social and material reality of health-related information infrastructures

  • adoption of telehealth for the self-management of chronic diseases

I am a Marie-Curie Alumni with an international network of connected health professionals. As well as a founding member of the MyData Health and Pandemic thematic groups, part of the award-winning digital data rights organization, MyData Global.

“Why are there so many barriers for getting access to my own data? No one really sees the problems involved with getting access to your own data until you are in the hot seat.”

— Steven Keating, Ph.D.

 

EXPERIENCE

POSTDOCTORAL RESEARCH

Postdoctoral researcher at NTNU in Trondheim, Norway. Part of the Digital Enterprise project. Researching digital transformation of contemporary topics. 

August 2020 - Present

DOCTORAL CANDIDATE

February 2019 - May 2020

Doctoral Candidate part of the Software, Systems, and Services (M3S) department at the University of Oulu, Finland. Research activities include dissertation manuscript preparation and publishing, writing project proposals, managing project funding, collaborating and organizing international research articles, reviewing and synthesizing literature, and conference presentations.

EARLY STAGE RESEARCHER

February 2016 - January 2019

Research Fellow part of CHESS (Connected Health Early Stage Research Support System) project in the INTERACT department of the University of Oulu, Finland. Research activities include presenting in international conferences, organizing interdisciplinary events, designing and conducting research in an industry setting, reviewing and synthesizing literature, and carrying out multidisciplinary and cross-sectoral training with health stakeholders including insurance organizations, healthcare professionals, policymakers, and end-users.

MYDATA HEALTH THEMATIC GROUP LEADER

October 2018 - August 2020

Active and co-founding member of the MyData Health thematic group. Ongoing advocation for the fair and sustainable governance of health data across healthcare stakeholders. Activities include public dissemination, co-creation of deliverables such as articles and white papers, conference organization and participation, topical presentations and webinars, and community engagement. 

 

EDUCATION

DOCTORATE OF PHILOSOPHY

University of Oulu, Finland
2016 - 2020

Faculty of Information Technology and Electrical Engineering, Doctorate of Philosophy. 180 Credits.

Dissertation: Health data as an enabler of digital transformation: A single holistic case study of connected insurance (2020).

Supervisors: Professor Minna Isomursu and Doctor Karin Väyrynen.

MASTERS OF IT MANAGEMENT

University of Umeå, Sweden
2013 - 2015

Department of Informatics, Masters of IT Management. 120 Credits.

Thesis 1: Open Data: Barriers when adopting, implementing, and innovating open data in local municipal organizations (2014).

Supervisor: Henrik Wimelius

Thesis 2: Irrelevant Soporific Measures: Giving information security management back its groove with sociomateriality (2015).

Supervisor: Lars Öbrand

BACHELOR OF TECHNOLOGY

Kwantlen Polytechnic University, Canada
2010 - 2012

School of Business, Department of Computer Science and Information Technology, Bachelor Degree of Technology. 120 Credits.

 

PUBLICATIONS

My portfolio presents a sample of recent publications. Take a look to get a sense of my writing, research, and areas of interest. 

The research approach adopted throughout my work is based on the critical realism philosophy, complemented by a portfolio of qualitative methodologies. My academic field is an interdisciplinary one, part of the Information Systems, Health Informatics, and Health IT fields. 

If you wish to discuss a potential collaboration or learn more about a specific publication, please feel free to contact me directly or connect with me on my social profiles.

JOURNAL ARTICLES

 
  1. Gaveikaite, V., Grundstrom, C., Winter, S., Schonenberg, H., Isomursu, M., Chouvarda, I., & Maglaveras, N. (2020). Challenges and opportunities for telehealth in the management of chronic obstructive pulmonary disease: a qualitative case study in Greece. BMC medical informatics and decision making, 20(1), 1-12.

  2. Grundstrom, C., Korhonen, O., Väyrynen, K., & Isomursu, M. (2020). Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 8(3):e16102. https://doi.org/10.2196/16102

  3. Ball, MP., Chung, S., de Zegher, I., Fabianek, C., Grundstrom, C., Knowles, P., Läteenoja, V., Langford, J., Lindén, F., Perälä-Heape, M., Schieke, M., Serdar, B., Siu, D., & Wang CC. (2020). MyData: Applying human-centric principles to health data. European Medical Writers Association 29(2). https://journal.emwa.org/the-data-economy/mydata-applying-human-centric-principles-to-health-data/article/5764/mydata_-applying-human-centric-principles-to-health-data.pdf

  4. Gaveikaite, V., Grundstrom, C., Lourida, K., Winter, S., Priori, R., Chouvarda, I., & Maglaveras, N. (2020). Developing a strategic understanding of telehealth service adoption for COPD care management: A causal loop analysis of healthcare professionals. PloS one, 15(3), e0229619. https://doi.org/10.1371/journal.pone.0229619

  5. Gaveikaite, V., Grundstrom, C., Winter, S., Chouvarda, I., Maglaveras, N., & Priori, R. (2019). A systematic map and in-depth review of European telehealth interventions efficacy for chronic obstructive pulmonary disease. Respiratory Medicine. 158, 78-88. https://doi.org/10.1016/j.rmed.2019.09.005

CONFERENCE PROCEEDINGS

  1. Grundstrom, C., Väyrynen, K., Iivari, N., & Isomursu, M. (2019). Making Sense of the General Data Protection Regulation—Four Categories of Personal Data Access Challenges. In Proceedings of the 52nd Hawaii International Conference on System Sciences (HICSS). https://doi.org/10.24251/hicss.2019.605

  2. Grundstrom, C., Gaveikaite, V., Barkhuus, L., Maglaveras, N., Winter, S., & Chouvarda, I. (2019). User Profiles of Healthcare Professionals in a Chronic Obstructive Pulmonary Disease Care Pathway. In Proceedings of the 13th EAI International Conference on Pervasive Computing Technologies for Healthcare (PervasiveHealth'19). ACM, New York, NY, USA, 444-451. https://doi.org/10.1145/3329189.3329243

  3. Persson, M., Grundstrom, C., & Giunti, G. (2019) Customer attitudes towards participation and health data sharing in the digital transformation of Finnish insurance. In Proceedings of the 32nd Bled eConference Humanizing Technology for a Sustainable Society, Bled, Slovenia, 821-838. https://doi.org/10.18690/978-961-286-280-0

  4. Grundstrom, C., Väyrynen, K., & Isomursu, M. (2018). Dimensions of Accessibility and Interoperability for Electronic Health Records in the Nordic Countries: A Qualitative Evidence Synthesis of Facilitators and Barriers. In Proceedings of the 22nd Pacific Asia Conference on Information Systems (PACIS), 287. https://aisel.aisnet.org/pacis2018/287

DOCTORAL DISSERTATION

  1. Grundstrom, C. (2020). Health data as an enabler of digital transformation: a single holistic case study of connected insurance. (Doctoral Dissertation). ISBN 978-952-62-2597-5. http://urn.fi/urn:isbn:9789526225975

 
 
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